Bucketsofluke

“Regular stuff bummers.” One of my best friends, Stefanie Phelps, just sent me that. It was a text reply to me after I told her that Luke gets to go back to Lawrence in the fall. She asked how excited he must be!? I explained to her that I think Luke is in shock. He…

I think I have mentioned before how incredibly fortunate we are that we have Children’s Hospital CO so close. I’ll mention again that the nurses that cared for Luke (and I) are absolute angels. Complete gifts. (minus a few of course). Most of which have had to have a quick sense of humor dealing with me and my shenanigans.…

This pic was on our official KU college tour. I’ll be honest and admit to waving the wheat and chanting RCJH while he and Mason were both in my belly. Actually my dad nicknamed the baby in my belly (I didn’t find out the sex of either of my chickens until their arrival) “baby wheat.”…

On and off during our long in-patient stays at Children’s the last 3 years there was a parent breakfast “hour” on Tuesday mornings with Panera cinnamon rolls and muffins (Duh- that’s for sure a reason to go). It was a chance to get out of your child’s room, meet other parents, introduce yourself, ask questions, maybe…

We be good. Everyday I can see Luke getting a little bit stronger. It is a slow progression but going in the right direction! Hard to actually see major progress due to it being specifically his lungs. They take a long time to heal especially due to the fact he is still on many prescriptions,…

Ya know when you go into a game as the underdog, not expected to win, but at the very minimum you are going to at least compete. Your entire heart is on the line. I always have the mindset to win. I’m extremely competitive. “So you’re sayin’ there’s a chance?!” Bring it on. You try…

Don’t grow up. It’s a trap. Adulting is hard. Parenting is difficult but the absolute joy of my life. I find joy and laughter every hour of every day. The last 52 days have been a pure nightmare, yet there have been relationships formed and nourished, lessons learned, and we hope and pray tomorrow will…

I have a spicy attitude today. There is spicy great, and spicy NO BUENO. Today is no bueno for me. But, this isn’t about me. Luke continues to do all the things he needs to do and battles in the ICU. He uses the stupid spirometer that makes him cough to high heaven with chest…

Just kiddin. Just finished Long rounds Bronchoscopy canceled for today. The risk of procedure vs. reward of what they actually find isn’t worth it. They will keep it on back burner – meaning they’d have to intubate and put him on a ventilator and recovering his lungs could take longer and put him at higher…

Well fucksticks. I am writing this as I sit just outside of Children’s Hospital. Luke woke up yesterday a bit worse, definitely not better. I called BMT line and they had him come in immediately. Since I have covid, GG (my mom) drove him. His dad had left to go out of town the day…